Learning My A B C's

A B C’s Of Ankylosing Spondylitis

Many people don’t understand my family’s sense of humor. I have become fused completely from my neck to my tailbone. Which means I do not have the ability to look down. So many times you will see me feeling around in my purse to find my glasses or keys. I will feel with my hands many times searching for items I need. I also place my plate and food in certain places so it is easier to eat without looking. I tread lightly when walking many times shuffling or putting my foot out to find the curb. Too many people I seem to be pretending to be blind. My grandson Hunter was born in 1995 and when he was eight months old we learned that he was blind. Our lives were changed forever. It has been a heart wrenching but the most wonderful journey getting to know this young man. I believe it is really Hunter that has taught my family the true meaning of strength. No matter how hard his road has been he is always laughing and joking.

One day he said, “ Nanny, you function like me.” I said, ‘Yes, I do.” He laughed and busted out laughing and said, “ You act like a seeing blind person and I be a blind person. We are a goofy pair.” When times get really difficult for me I will go back to that day when we laughed at the seeing blind person, and I find the strength that I need to get through the next day. So always remember your ABC’s.

A is for acting blind.

B is for being blind.

C is for the courage it takes to live our life to the best ability we can.