AS Challenge
1. The illness I live with is Ankylosing Spondylitis (AS).
2. I was diagnosed with it in the year: 2002 When I had to have an emergency cervical fusion. The doctor failed to mention it to me, documented in my report. Patient has AS suggest to learn to live with it, nothing can be done. Terminal. So many years wasted. I was finally told in 2002. After I asked him about it.
3. But I had symptoms since the age of 10 or so. Looking back I realize a lot of issues and problem with my health were due to A.S.
4. The biggest adjustment I’ve had to make is: Getting my mind and body on the same wavelength. My mind still feels like the old me and I can do anything but my body quickly reminds me that is not so.
5. Most people assume: That I am mad or upset because I have not learned to have a clown face when in pain or hurting. They don’t see what is wrong with me so there for it must not exist. You know the saying Seeing is believing.
6. The hardest part about mornings are the days when I wished I had not woke up.
7. My favorite medical TV show is Discovery Health.
8. A gadget I couldn’t live without is my computer.
9. The hardest part about nights is having to try to lay down, that is the most painful thing for me.
10. Each day I take _ a deep breath with a big dose of faith and the medications I need to go through my life it varies.
11. Regarding alternative treatments I: meditate. I am considering trying the low starch diet.
12. If I had to choose between an invisible illness or visible I would choose: visible because we are a society of seeing is believing.
13. Regarding working and career: I miss being valuable and having self-worth.
14. People would be surprised to know: that my husband caught me moments before taking my life.
15. The hardest thing to accept about my new reality has been: that I no longer know who I am.
16. Something I never thought I could do with my illness that I did was: Accept.
17. The commercials about my illness: Never seen one and I think that is the biggest shame yet.
18. Something I really miss doing since I was diagnosed is: Being able to lay my head on my husband's chest.
19. It was really hard to have to give up: my role as the care taker and care giver.
20. A new hobby I have taken up since my diagnosis is: being online.
21. If I could have one day of feeling normal again I would: Enjoy every second and not waste one minute of that day, Horseback riding here I come!
22. My illness has taught me: That I wasn’t promised anything and that I am thankful for everything I am blessed with.
23. Want to know a secret? One thing people say that gets under my skin is: when I say I am in pain they will ask what did you do to yourself?
24. But I love it when people: treat me as the old me.
25. My favorite motto, scripture, quote that gets me through tough times is every act of kindness no matter how small is ever wasted. Success is never final, failure is never fatal, it is the courage to continue that matters most.
26. When someone is diagnosed I’d like to tell them: Stand up for yourself It is YOUR life YOUR health YOUR future fight for it! You are worth it!
27. Something that has surprised me about living with an illness is: How uncaring doctors are.
28. The nicest thing someone did for me when I wasn’t feeling well was: tuck me in bed and watched over me.
29. I’m involved with Invisible Illness Week because: awareness brings a cure.
30. The fact that you read this list makes me feel: grateful you cared enough.
1. The illness I live with is Ankylosing Spondylitis (AS).
2. I was diagnosed with it in the year: 2002 When I had to have an emergency cervical fusion. The doctor failed to mention it to me, documented in my report. Patient has AS suggest to learn to live with it, nothing can be done. Terminal. So many years wasted. I was finally told in 2002. After I asked him about it.
3. But I had symptoms since the age of 10 or so. Looking back I realize a lot of issues and problem with my health were due to A.S.
4. The biggest adjustment I’ve had to make is: Getting my mind and body on the same wavelength. My mind still feels like the old me and I can do anything but my body quickly reminds me that is not so.
5. Most people assume: That I am mad or upset because I have not learned to have a clown face when in pain or hurting. They don’t see what is wrong with me so there for it must not exist. You know the saying Seeing is believing.
6. The hardest part about mornings are the days when I wished I had not woke up.
7. My favorite medical TV show is Discovery Health.
8. A gadget I couldn’t live without is my computer.
9. The hardest part about nights is having to try to lay down, that is the most painful thing for me.
10. Each day I take _ a deep breath with a big dose of faith and the medications I need to go through my life it varies.
11. Regarding alternative treatments I: meditate. I am considering trying the low starch diet.
12. If I had to choose between an invisible illness or visible I would choose: visible because we are a society of seeing is believing.
13. Regarding working and career: I miss being valuable and having self-worth.
14. People would be surprised to know: that my husband caught me moments before taking my life.
15. The hardest thing to accept about my new reality has been: that I no longer know who I am.
16. Something I never thought I could do with my illness that I did was: Accept.
17. The commercials about my illness: Never seen one and I think that is the biggest shame yet.
18. Something I really miss doing since I was diagnosed is: Being able to lay my head on my husband's chest.
19. It was really hard to have to give up: my role as the care taker and care giver.
20. A new hobby I have taken up since my diagnosis is: being online.
21. If I could have one day of feeling normal again I would: Enjoy every second and not waste one minute of that day, Horseback riding here I come!
22. My illness has taught me: That I wasn’t promised anything and that I am thankful for everything I am blessed with.
23. Want to know a secret? One thing people say that gets under my skin is: when I say I am in pain they will ask what did you do to yourself?
24. But I love it when people: treat me as the old me.
25. My favorite motto, scripture, quote that gets me through tough times is every act of kindness no matter how small is ever wasted. Success is never final, failure is never fatal, it is the courage to continue that matters most.
26. When someone is diagnosed I’d like to tell them: Stand up for yourself It is YOUR life YOUR health YOUR future fight for it! You are worth it!
27. Something that has surprised me about living with an illness is: How uncaring doctors are.
28. The nicest thing someone did for me when I wasn’t feeling well was: tuck me in bed and watched over me.
29. I’m involved with Invisible Illness Week because: awareness brings a cure.
30. The fact that you read this list makes me feel: grateful you cared enough.
No comments:
Post a Comment